Tag: mental health

I think my Child has Scoliosis – 3 things NOT to do

Posted on April 14, 2022 by - Blog

As parents, we all want to do the best for our children – and when you suspect Scoliosis it can be hard to know what to do. Despite efforts from the Scoliosis community the condition is still widely unknown in the general population which can lead to confusion and that feeling of not knowing where to turn. The most important step to take if you do suspect scoliosis is simply to get active – reach out for help and get the ball rolling.

There are however, a few things you should definitely not do – these three issues are, in our experience the biggest pitfalls for parents of children with scoliosis, so wherever possible do not:

 

1 – Be passive

Because Scoliosis is a lesser known condition, you may well not know anyone who has suffered with the condition. The reality is that Scoliosis should be treated as quickly as possible, as treatment is much easier with a smaller curve, however the lack of awareness in the community can lead to a false sense of lack of urgency. Even amongst those who do know about Scoliosis, many are still unaware that new, non-surgical treatment options now exist. 10- 15 years ago, it was thought that surgery was the only effective option for treating scoliosis, so even many medical professionals were simply taught that the best approach to scoliosis is to “wait and see” if the curve becomes bad enough for treatment. The problem is that scoliosis almost never resolves on its own[1] so while it’s possible it may not progress further “wait and see” is never a good option – at the very least see a scoliosis specialist and ensure the condition is being monitored.

 

2 – Ignore the costs

Unfortunately, very little non-surgical Scoliosis treatment is available in the UK through the NHS. This means that if you’re looking for non-surgical treatment, you’ll probably be taking about private care. Please do see your GP to find out what is available in your area, but you should expect that Scoliosis treatment will cost you money.

It’s easy to react to these costs by either ignoring them (which isn’t responsible) or failing to contextualise them properly (which isn’t realistic). There are two major factors to consider here. Firstly, if you are seeking help for a scoliosis case which is already severe, the chances for successful treatment without surgery are lower – the larger the existing curve, the higher the chance non-surgical approaches will fail. A reputable scoliosis practitioner will give you the best indication they can as to the possible outcomes of treatment and what you might expect in a best or worst case scenario – you should base your decision on the cost of treatment on your own expectations for outcomes, and how likely they are. In some cases, you may be paying simply to delay surgery which will be required anyway and this is important to remember.

At the other end of the scale, it’s critical to remember that Scoliosis treatment is a long process – the totality of your scoliosis treatment will extend from discovery of the condition through until your child has reached adulthood – it’s therefore essential to remember that the costs for treatment are spread over a very long period of time. The price of a Scoliosis brace, for example, is therefore best considered as a monthly one over duration of the brace, rather than a single one off cost.

 

3 – Forget about mental health

Scoliosis can be stressful for everyone involved – and since it’s a condition which commonly affects teens and young adults, it comes at a time of life which is already delicate for many. There are two main approaches to scoliosis treatment plans to choose from – one is group based treatment, and one is individual treatment. Group based settings offer no privacy, but can potentially foster a ready made support group, whereas private one to one settings offer privacy without peer support.

The right kind of environment for you will of course depend on your own child’s preferences – so try to keep this in mind when choosing a clinic. At the UK Scoliosis clinic, we provide a private one to one environment, although we welcome as many relatives or friends that your child would like to have around them to attend consultations, exercise sessions and treatment reviews. Research has shown that having a calming and private environment to discuss and perform treatment can actually lead to better clinical outcomes, although this won’t be ideal for every child. [2]

 

Getting help

If you’re concerned about Scoliosis, please don’t hesitate to get in touch with us – we offer Scoliosis consultations online as well as at the clinic with no obligation to take up treatment, whatever you do – be active!

 

 

[1] Angelo G Aulisa et al. ‘Brace treatment in juvenile idiopathic scoliosis: a prospective study in accordance with the SRS criteria for bracing studies – SOSORT award 2013 winner, Scoliosis 2014 9:3

[2] Elisabetta D’Agata et al. Introversion, the prevalent trait of adolescents with idiopathic scoliosis: an observational study Scoliosis and Spinal Disorders (2017) 12:27

I think my Child has Scoliosis – 3 things NOT to do

Posted on July 23, 2021 by - Blog

As parents, we all want to do the best for our children – and when you suspect Scoliosis it can be hard to know what to do. Despite efforts from the Scoliosis community the condition is still widely unknown in the general population which can lead to confusion and that feeling of not knowing where to turn. The most important step to take if you do suspect scoliosis is simply to get active – reach out for help and get the ball rolling.

There are, however, a few things you should definitely not do – these three issues are, in our experience, the biggest pitfalls for parents of children with scoliosis, so, wherever possible, do not:

 

Be passive

Because Scoliosis is a lesser known condition, you may well not know anyone who has suffered with the condition. The reality is that Scoliosis should be treated as quickly as possible, as treatment is much easier with a smaller curve, however the lack of awareness in the community can lead to a false sense of lack of urgency. Even amongst those who do know about Scoliosis, many are still unaware that new, non-surgical treatment options now exist. 10- 15 Years ago, it was thought that surgery was the only effective option for treating scoliosis, so even many medial professionals were simply taught that the best approach to scoliosis is to “wait and see” if the curve becomes bad enough for treatment. The problem is that scoliosis almost never resolves on its own[1] so while it’s possible it may not progress further “wait and see” is never a good option – at the very least see a scoliosis specialist and ensure the condition is being monitored.

 

Ignore the costs

Unfortunately, very little non-surgical Scoliosis treatment is available in the UK through the NHS. This means that if you’re looking for non-surgical treatment, you’ll probably be taking about private care. Please do see your GP to find out what is available in your area, but you should expect that Scoliosis treatment will cost you money.

It’s easy to react to these costs by either ignoring them (which isn’t responsible) or failing to contextualise them properly (which isn’t realistic). There are two major factors to consider here. Firstly, if you are seeking help for a scoliosis case which is already severe, the chances for successful treatment without surgery are lower – the larger the existing curve, the higher the chance non-surgical approaches will fail. A reputable scoliosis practitioner will give you the best indication they can as to the possible outcomes of treatment and what you might expect in a best or worst case scenario – you should base your decision on the cost of treatment on your own expectations for outcomes, and how likely they are. In some cases, you may be paying simply to delay surgery which will be required anyway and this is important to remember.

At the other end of the scale, it’s critical to remember that Scoliosis treatment is a long process – the totality of your scoliosis treatment will extend from discovery of the condition through until your child has reached adulthood – it’s therefore essential to remember that the costs for treatment are spread over a very long period of time. The price of a Scoliosis brace, for example, is therefore best considered as a monthly one over duration of the brace, rather than a single one off cost.

 

Forget about mental health

Scoliosis can be stressful for everyone involved – and since it’s a condition which commonly affects teens and young adults, it comes at a time of life which is already delicate for many. There are two main approaches to scoliosis treatment plans to choose from – one is group based treatment, and one is individual treatment. Group based settings offer no privacy, but can potentially foster a ready made support group, whereas private one to one settings offer privacy without peer support.

The right kind of environment for you will of course depend on your own child’s preferences – so try to keep this in mind when choosing a clinic. At the UK Scoliosis clinic, we provide a private one to one environment, although we welcome as many relatives or friends that your child would like to have around them to attend consultations, exercise sessions and treatment reviews. Research has shown that having a calming and private environment to discuss and perform treatment can actually lead to better clinical outcomes, although this won’t be ideal for every child. [2]

 

 

Getting help

If you’re concerned about Scoliosis, please don’t hesitate to get in touch with us – we offer Scoliosis consultations online as well as at the clinic with no obligation to take up treatment, whatever you do, be active!

[1] Angelo G Aulisa et al. ‘Brace treatment in juvenile idiopathic scoliosis: a prospective study in accordance with the SRS criteria for bracing studies – SOSORT award 2013 winner, Scoliosis 2014 9:3

[2] Elisabetta D’Agata et al. Introversion, the prevalent trait of adolescents with idiopathic scoliosis: an observational study Scoliosis and Spinal Disorders (2017) 12:27

Is scoliosis a risk factor for mental health?

Posted on November 16, 2019 by - Blog

Like all reputable clinics, the UK scoliosis clinic focuses the majority of its time and effort on providing the best possible treatment for scoliosis cases. For the most part, this means keeping up with the latest research, bracing and exercise based techniques which can assist in controlling and reducing scoliosis, however, where we also concentrate a lot of time and attention is to the psychological aspects of living with and being treated for scoliosis.

 

Scoliosis and Psychological factors

Like any condition, Scoliosis can obviously cause distress and concern – but there are some specific factors associated with scoliosis which may make the condition especially difficult for many patients to cope with. The key areas include:

  • The fact that Scoliosis does cause physical deformity, and very often strikes at the most sensitive time in a young person’s life. It’s normal and expected for teens and young adults to experience stress and difficulty associated with physical changes in their body and the formation of their adult identity, even under typical circumstances – scoliosis can certainly complicate this.
  • Misinformation about scoliosis which is frequently repeated. Many still believe that a diagnosis of scoliosis necessitates surgery, which, ironically, can prevent some people from taking advantage of screening. It’s also commonly believed that scoliosis can impact on the ability to have children, take part in physical activity or even live a normal life. While it’s true that if left untreated scoliosis could lead to some of these outcomes, early treatment can often make such outcomes almost completely avoidable.
  • Concerns about bracing, and stigma associated with bracing. It’s certainly the case that “old style” braces such as the Boston brace were visible, clunky and certainly embarrassing for young people – but modern CAD/CAM braces, such as ScoliBrace, are virtually invisible under clothing.
  • Fear of being unable to participate in normal activities. Again, with modern bracing technology this is rarely if ever, an issue – today’s braces are so easy to put on and take off that they can simply be removed for exercise, although designs such as ScoliBrace are actually flexible enough to be left on.

With each of these concerns, the critical point to stress is that Scoliosis, if caught early enough can now usually be treated non-surgically and quite quickly, through bracing, exercise or a combination of both. The best possible way to detect scoliosis is through a routine screening, which can often allow the condition to be detected long before it has progressed to a significant degree.

 

Scoliosis and psychological health : scientific research

There has been some limited research which has sought to understand the impact that scoliosis can have on a young person’s psychological health – although it’s still fair to say that only a small part of the literature relating to scoliosis considers this angle, there is still sufficient a body of evidence for us to draw some meaningful conclusions.

One such study looked at adolescents with and without scoliosis in Minnesota who were 12 through 18 years of age. During the study, six hundred eighty-five cases of scoliosis were identified from the 34,706 adolescents. The prevalence was therefore 1.97%  (incidentally, this is slightly below the average figure). The researchers wanted to calculate the odds ratio of scoliosis to some common psychological issues.

Put simply, an odds ratio is a measure of how strongly related two items are – An odds ratio of more than 1 means that there are a higher odds of property B happening with exposure to property A, whereas an odds ratio of exactly 1 means that exposure to property A does not affect the odds of property B. An odds ratio is less than 1 is associated with lower odds of two factors being related. [1]

In the study, of the 685 adolescents with scoliosis, the odds ratio for having suicidal thought among adolescents with scoliosis, compared to adolescents without scoliosis, was 1.40 after adjustment for race, gender, socioeconomic status, and age. The odds ratio for having feelings about poor body development among adolescents with scoliosis was 1.82 compared with adolescents without scoliosis after adjustment for race, gender, socioeconomic status, and age. Scoliosis was therefore deemed to be an independent risk factor for suicidal thought, worry and concern over body development, and peer interactions.

In a 2019 study, which compared scoliosis treatment approaches, the SRS-22 (a standardised scoliosis quality of life screening form) was used to explore the impact which treatment had on psychological health.  Here, researchers noticed that self-image was significantly improved amongst patients treated with a scoliosis brace, especially at a follow up after 12 months of treatment, this was especially interesting given the negative self-image association which is sometimes linked to bracing

Researchers found a similar improvement in patients treated with an exercise methodology –  all the SRS-22 quality of life subsets showed a slightly larger improvement across the three visits than bracing, although the correction of scoliosis was less.[2]

 

Does scoliosis affect psychological health?

From the research which has been conducted, as well as our own experience at the clinic we feel it’s safe to say that scoliosis can be a significant risk factor for psychological health – especially in young people. While this certainly does not mean that everyone with scoliosis will struggle with mental health as a result, it’s clearly important that scoliosis clinicians are aware of the risk, and work to mitigate it.

At the UK Scoliosis clinic, we believe that properly researched information, coupled with effective treatment, applied as quickly as possible is the best possible way to address the psychological risks associated with scoliosis. It’s for this reason that we continue to recommend frequent screening throughout high risk years. It cannot be stressed enough that early detection, coupled with good information can go the majority of the distance in diffusing some of the  main concerns around a scoliosis diagnosis. We would caution parents and sufferers from relying on general advice or information pulled from the internet – the best option is by far a consultation with a scoliosis professional.

[1] Payne, William K. III, MD, et al. Does Scoliosis Have a Psychological Impact and Does Gender Make a Difference? Spine: June 15, 1997 – Volume 22 – Issue 12 – p 1380–1384

[2] Yu Zheng, MD PhD et al. Whether orthotic management and exercise are equally effective to the patients with adolescent idiopathic scoliosis in Mainland China? – A randomized controlled trial study SPINE: An International Journal for the study of the spine [Publish Ahead of Print]